20th Anniversary PSCP Conference Video - Short Version
PSC Partners Seeking a Cure
20th Anniversary PSCP Conference Video - Short Version
1:16
Flashback to Board of Directors in Their 20s
PSC Partners Seeking a Cure
Flashback to Board of Directors in Their 20s
1:30
Kathy Halloran, PSC Caregiver and PSC Partners Board Member, encourages participation in WALK83.01!
PSC Partners Seeking a Cure
Kathy Halloran, PSC Caregiver and PSC Partners Board Member, encourages participation in WALK83.01!
0:39
David Lloyd, an Appalachian Trail Hiker and Person with PSC, encourages WALK83.01 participation.
PSC Partners Seeking a Cure
David Lloyd, an Appalachian Trail Hiker and Person with PSC, encourages WALK83.01 participation.
0:47
WALK83.01 Kick-Off Video
PSC Partners Seeking a Cure
WALK83.01 Kick-Off Video
0:22
Enhancing the Search for PSC Treatment for All, PSC Partners Webinar
PSC Partners Seeking a Cure
Enhancing the Search for PSC Treatment for All, PSC Partners Webinar
1:30:10
20th Anniversary PSC Partners Annual Conference Date and Location Reveal
PSC Partners Seeking a Cure
20th Anniversary PSC Partners Annual Conference Date and Location Reveal
1:26
Happy Rare Disease Day from PSC Partners Seeking a Cure! #shorts #PSCaware #RareDiseaseDay
PSC Partners Seeking a Cure
Happy Rare Disease Day from PSC Partners Seeking a Cure! #shorts #PSCaware #RareDiseaseDay
0:24
Hiking the Appalachian Trail with the Rare Liver Disease PSC
PSC Partners Seeking a Cure
Hiking the Appalachian Trail with the Rare Liver Disease PSC
1:52
Our Liver Love Story: Jessica and Ian Travis
PSC Partners Seeking a Cure
Our Liver Love Story: Jessica and Ian Travis
11:57
PSC Partners Founder and CEO Ricky Safer Wishes Everyone a Happy New Year!
PSC Partners Seeking a Cure
PSC Partners Founder and CEO Ricky Safer Wishes Everyone a Happy New Year!
0:41
Slideshow - 2023 PSC Partners Conference, Henderson, NV, USA
PSC Partners Seeking a Cure
Slideshow - 2023 PSC Partners Conference, Henderson, NV, USA
4:11
Trailer for A Liver Love Story -- Full Video Coming Soon
PSC Partners Seeking a Cure
Trailer for A Liver Love Story -- Full Video Coming Soon
2:27
Global PSC Awareness Day -- Thoughts about Quality of Life from Jason on His First Liverversary.
PSC Partners Seeking a Cure
Global PSC Awareness Day -- Thoughts about Quality of Life from Jason on His First Liverversary.
7:28
2023 PSC Partners Annual Conference: Saturday General Session 3
PSC Partners Seeking a Cure
2023 PSC Partners Annual Conference: Saturday General Session 3
1:09:16
2023 PSC Partners Annual Conference Session: PSC and IBD Research, Keys to Understanding PSC
PSC Partners Seeking a Cure
2023 PSC Partners Annual Conference Session: PSC and IBD Research, Keys to Understanding PSC
59:01
2023 PSC Partners Annual Conference: Saturday General Session 2
PSC Partners Seeking a Cure
2023 PSC Partners Annual Conference: Saturday General Session 2
1:28:35
2023 PSC Partners Annual Conference Session: Liver Transplant -- The Why, How, and When
PSC Partners Seeking a Cure
2023 PSC Partners Annual Conference Session: Liver Transplant -- The Why, How, and When
55:34
2023 PSC Partners Conference Session: Clinical Trial Landscape in PSC -- Updates & Opportunities
PSC Partners Seeking a Cure
2023 PSC Partners Conference Session: Clinical Trial Landscape in PSC -- Updates & Opportunities
47:12
2023 PSC Partners Conference Session: The Gut Microbiome -- What We Know and Where We're Going
PSC Partners Seeking a Cure
2023 PSC Partners Conference Session: The Gut Microbiome -- What We Know and Where We're Going
1:00:05
2023 PSC Partners Annual Conference: Saturday General Session 1
PSC Partners Seeking a Cure
2023 PSC Partners Annual Conference: Saturday General Session 1
1:37:28
2023 PSC Partners Annual Conference, Friday, General Session 1
PSC Partners Seeking a Cure
2023 PSC Partners Annual Conference, Friday, General Session 1
1:08:26
2023 Conference: Uncovering Cellular Drivers of PSC -- Discovery & Innovation through Collaboration
PSC Partners Seeking a Cure
2023 Conference: Uncovering Cellular Drivers of PSC -- Discovery & Innovation through Collaboration
49:48
BELONGING IS AN OUTCOME - PSC Partners CEO Ricky Safer's Message to Conference Attendees
PSC Partners Seeking a Cure
BELONGING IS AN OUTCOME - PSC Partners CEO Ricky Safer's Message to Conference Attendees
3:02
Living with PSC Podcast Host Niall McKay talks about missing the Conference and having a transplant
PSC Partners Seeking a Cure
Living with PSC Podcast Host Niall McKay talks about missing the Conference and having a transplant
1:11
PSC Partners CEO Ricky Safer's Message About Resnek Family Gift to BWH for PSC Research
PSC Partners Seeking a Cure
PSC Partners CEO Ricky Safer's Message About Resnek Family Gift to BWH for PSC Research
1:58
Post-Transplant PSC Patient Jason Sparks Encourages Participation in WALK83.01 for PSC
PSC Partners Seeking a Cure
Post-Transplant PSC Patient Jason Sparks Encourages Participation in WALK83.01 for PSC
1:35
Jen Chavez Encourages WALK83.01 Participation
PSC Partners Seeking a Cure
Jen Chavez Encourages WALK83.01 Participation
0:27
Mahesh Krishna Encourages Participation in our WALK83.01 for PSC Fundraiser
PSC Partners Seeking a Cure
Mahesh Krishna Encourages Participation in our WALK83.01 for PSC Fundraiser
0:30
Kathy Halloran Encourages Folks Register for WALK83.01 for PSC Fundraiser
PSC Partners Seeking a Cure
Kathy Halloran Encourages Folks Register for WALK83.01 for PSC Fundraiser
0:49
2023 PSC Partners Conference Date Announcement
PSC Partners Seeking a Cure
2023 PSC Partners Conference Date Announcement
3:32
Moe Rare Disease Day Message 2023
PSC Partners Seeking a Cure
Moe Rare Disease Day Message 2023
2:05
Three Perspectives in PSC Care: A Fireside Chat
PSC Partners Seeking a Cure
Three Perspectives in PSC Care: A Fireside Chat
1:28:39
Lara Rare Disease Day Message 2023
PSC Partners Seeking a Cure
Lara Rare Disease Day Message 2023
0:04
Jessica Rare Disease Day Message 2023
PSC Partners Seeking a Cure
Jessica Rare Disease Day Message 2023
0:11
Emmett Rare Disease Day Message 2023
PSC Partners Seeking a Cure
Emmett Rare Disease Day Message 2023
0:12
Kathy Rare Disease Day Message 2023
PSC Partners Seeking a Cure
Kathy Rare Disease Day Message 2023
0:17
Embracing Diversity in PSC
PSC Partners Seeking a Cure
Embracing Diversity in PSC
1:37:00
Liver Transplant: Everything You Want to Know, Both Pre- and Post-Transplant
PSC Partners Seeking a Cure
Liver Transplant: Everything You Want to Know, Both Pre- and Post-Transplant
1:28:21
The Future of PSC: Disease Pathogenesis, Oral Vancomycin, and Cancer Prevention and Surveillance
PSC Partners Seeking a Cure
The Future of PSC: Disease Pathogenesis, Oral Vancomycin, and Cancer Prevention and Surveillance
1:03:06
2022 Happy Global PSC Awareness Day Message Compilation
PSC Partners Seeking a Cure
2022 Happy Global PSC Awareness Day Message Compilation
4:17
Community Connections Episode 4 - Meet Yvette
PSC Partners Seeking a Cure
Community Connections Episode 4 - Meet Yvette
5:27
The Clinical Trial Landscape in PSC: Current and New Opportunities for Patients
PSC Partners Seeking a Cure
The Clinical Trial Landscape in PSC: Current and New Opportunities for Patients
1:05:41
The PSC-IBD Connection
PSC Partners Seeking a Cure
The PSC-IBD Connection
1:30:31
PSC and IBD: What Everyone Wants to Know About Diet and Nutrition
PSC Partners Seeking a Cure
PSC and IBD: What Everyone Wants to Know About Diet and Nutrition
1:31:27
How to Join the PSC Partners Patient Registry: a Video Tutorial 2022
PSC Partners Seeking a Cure
How to Join the PSC Partners Patient Registry: a Video Tutorial 2022
4:09
Welcome to Day 2 of 2022 PSC Partners Conference and Carrying on the Spirit
PSC Partners Seeking a Cure
Welcome to Day 2 of 2022 PSC Partners Conference and Carrying on the Spirit
7:40
Launch of International Collaborative Research Network (ICRNetwork) & PSC Partners Research Agenda
PSC Partners Seeking a Cure
Launch of International Collaborative Research Network (ICRNetwork) & PSC Partners Research Agenda
57:53
Envisioning a Brighter Future: Progress Toward a Cure for PSC
PSC Partners Seeking a Cure
Envisioning a Brighter Future: Progress Toward a Cure for PSC
19:41
WELCOME to 2022 Annual PSC Partners Conference from Co-Hosts
PSC Partners Seeking a Cure
WELCOME to 2022 Annual PSC Partners Conference from Co-Hosts
12:53
Envisioning a Brighter Future: Uniting Efforts Through the ICRNetwork
PSC Partners Seeking a Cure
Envisioning a Brighter Future: Uniting Efforts Through the ICRNetwork
15:14
International PSC Research: Updates Across Spectrum – From IBD & Fibrosis to Genetics & Environment
PSC Partners Seeking a Cure
International PSC Research: Updates Across Spectrum – From IBD & Fibrosis to Genetics & Environment
1:32:19
WIND Think Tank: Discussion of PSC Partners Worldwide Integration of Natural History Databases
PSC Partners Seeking a Cure
WIND Think Tank: Discussion of PSC Partners Worldwide Integration of Natural History Databases
48:37
The PSC Partners Patient-Reported Outcomes Measure (PROM) Project: Updates from the Research Leads
PSC Partners Seeking a Cure
The PSC Partners Patient-Reported Outcomes Measure (PROM) Project: Updates from the Research Leads
1:13:04
The Power of Natural History Data to Support Drug Development for PSC
PSC Partners Seeking a Cure
The Power of Natural History Data to Support Drug Development for PSC
56:56
Sharing PSC Patient Perspectives
PSC Partners Seeking a Cure
Sharing PSC Patient Perspectives
28:52
Keynote: The International Collaborative Network Approach: Turning Hope into Action
PSC Partners Seeking a Cure
Keynote: The International Collaborative Network Approach: Turning Hope into Action
34:56
Ruth-Anne Pai Explains How to Navigate Conference Poster Hall
PSC Partners Seeking a Cure
Ruth-Anne Pai Explains How to Navigate Conference Poster Hall
1:13
Virtual Platform Tour - 2022 PSC Partners Annual Conference
PSC Partners Seeking a Cure
Virtual Platform Tour - 2022 PSC Partners Annual Conference
9:00
The Basics of Pediatric PSC -- PSC Partners 2022 Pre-Conference Webinar
PSC Partners Seeking a Cure
The Basics of Pediatric PSC -- PSC Partners 2022 Pre-Conference Webinar
1:32:12
Newcomer Orientation -- PSC Partners 2022 Pre-Conference Webinar
PSC Partners Seeking a Cure
Newcomer Orientation -- PSC Partners 2022 Pre-Conference Webinar
58:45
Fred Sabernick shares why he keeps coming back to PSC Partners Conferences
PSC Partners Seeking a Cure
Fred Sabernick shares why he keeps coming back to PSC Partners Conferences
0:53
Basics of PSC - PSC Partners 2022 Pre-Conference Webinar
PSC Partners Seeking a Cure
Basics of PSC - PSC Partners 2022 Pre-Conference Webinar
1:27:04
Conference Q & A: Why Should Researchers and Clinicians Attend the Conference?
PSC Partners Seeking a Cure
Conference Q & A: Why Should Researchers and Clinicians Attend the Conference?
2:06
Conference Q & A: How Can I Register for the 2022 PSC Partners Conference?
PSC Partners Seeking a Cure
Conference Q & A: How Can I Register for the 2022 PSC Partners Conference?
1:31
Conference Q & A: How Can I Support the 2022 PSC Partners Conference?
PSC Partners Seeking a Cure
Conference Q & A: How Can I Support the 2022 PSC Partners Conference?
3:00
Niall and Marissa Share Why They Are Attending the Conference
PSC Partners Seeking a Cure
Niall and Marissa Share Why They Are Attending the Conference
0:28
Dr. Korzenik and Dr. Pratt: Conference Overview
PSC Partners Seeking a Cure
Dr. Korzenik and Dr. Pratt: Conference Overview
4:10
Conference Q & A: I'm Canadian. What Can I Expect at the Conference?
PSC Partners Seeking a Cure
Conference Q & A: I'm Canadian. What Can I Expect at the Conference?
2:34
Conference Q & A: How Can I Help Spread the Word?
PSC Partners Seeking a Cure
Conference Q & A: How Can I Help Spread the Word?
1:50
Conference Q & A: What is the ICRNetwork (International Collaborative Research Network)?
PSC Partners Seeking a Cure
Conference Q & A: What is the ICRNetwork (International Collaborative Research Network)?
2:42
Conference Q & A: Why Should I Attend the 2022 PSC Partners Conference?
PSC Partners Seeking a Cure
Conference Q & A: Why Should I Attend the 2022 PSC Partners Conference?
4:36
ROADMAP -- Power of the Patient Experience: Translating Nat History Data into Research Breakthroughs
PSC Partners Seeking a Cure
ROADMAP -- Power of the Patient Experience: Translating Nat History Data into Research Breakthroughs
49:37
ROADMAP Natural History 101 - Power of Patient Experience: Basics of Natural History Registries
PSC Partners Seeking a Cure
ROADMAP Natural History 101 - Power of Patient Experience: Basics of Natural History Registries
49:09
2020 Annual Report - PSC Partners Seeking a Cure
PSC Partners Seeking a Cure
2020 Annual Report - PSC Partners Seeking a Cure
1:10
Community Connections Episode 3 - Meet Emmett...
PSC Partners Seeking a Cure
Community Connections Episode 3 - Meet Emmett...
4:57
Registry Director Explains Importance of the PSC Partners Patient Registry
PSC Partners Seeking a Cure
Registry Director Explains Importance of the PSC Partners Patient Registry
3:38
ROADMAP Drug Development 201 - Our Pursuit of a Cure for PSC: Patient-Focused Drug Development
PSC Partners Seeking a Cure
ROADMAP Drug Development 201 - Our Pursuit of a Cure for PSC: Patient-Focused Drug Development
47:57
Community Connections Episode 2 - Meet Julianne Vasichek
PSC Partners Seeking a Cure
Community Connections Episode 2 - Meet Julianne Vasichek
5:01
Community Connections Episode 1 - Meet Fred Sabernick
PSC Partners Seeking a Cure
Community Connections Episode 1 - Meet Fred Sabernick
4:37
ROADMAP Drug Development 101 - Our Pursuit of a Cure for PSC: Patients as Pillars of Clinical Trials
PSC Partners Seeking a Cure
ROADMAP Drug Development 101 - Our Pursuit of a Cure for PSC: Patients as Pillars of Clinical Trials
50:02
Nicole says, "Join the PSC Partners Mentor Program!"
PSC Partners Seeking a Cure
Nicole says, "Join the PSC Partners Mentor Program!"
0:47
Happy Global PSC Awareness Day 2021
PSC Partners Seeking a Cure
Happy Global PSC Awareness Day 2021
3:52
ROADMAP Research 301 --The PSC Research Landscape: Now & Into the Future - Charting a Path Forward
PSC Partners Seeking a Cure
ROADMAP Research 301 --The PSC Research Landscape: Now & Into the Future - Charting a Path Forward
40:15
ROADMAP Initiative Poster Presentation Global Genes 2021
PSC Partners Seeking a Cure
ROADMAP Initiative Poster Presentation Global Genes 2021
3:55
Research 201 - The PSC Research Landscape: Now and Into the Future -- Identifying Research Questions
PSC Partners Seeking a Cure
Research 201 - The PSC Research Landscape: Now and Into the Future -- Identifying Research Questions
58:59
ROADMAP Research 101 -- The PSC Research Landscape: Now and Into the Future -- Five Concepts in PSC
PSC Partners Seeking a Cure
ROADMAP Research 101 -- The PSC Research Landscape: Now and Into the Future -- Five Concepts in PSC
35:51
ROADMAP Initiative Webinar 201: Development of a PROM for PSC
PSC Partners Seeking a Cure
ROADMAP Initiative Webinar 201: Development of a PROM for PSC
58:55
ROADMAP Initiative Webinar 101: Let's Talk PSC Symptoms
PSC Partners Seeking a Cure
ROADMAP Initiative Webinar 101: Let's Talk PSC Symptoms
36:18
ROADMAP Initiative Kick-Off Webinar
PSC Partners Seeking a Cure
ROADMAP Initiative Kick-Off Webinar
1:21:30
Two Minute Faces of PSC 2
PSC Partners Seeking a Cure
Two Minute Faces of PSC 2
2:14
Copy of Faces of Primary Sclerosing Cholangitis (PSC) (shortened for Canada)
PSC Partners Seeking a Cure
Copy of Faces of Primary Sclerosing Cholangitis (PSC) (shortened for Canada)
4:18
Faces of Primary Sclerosing Cholangitis (PSC)
PSC Partners Seeking a Cure
Faces of Primary Sclerosing Cholangitis (PSC)
6:28
PSC, IBD, and the COVID-19 Vaccines
PSC Partners Seeking a Cure
PSC, IBD, and the COVID-19 Vaccines
1:24:14
2020 Accomplishments, PSC Partners Seeking a Cure
PSC Partners Seeking a Cure
2020 Accomplishments, PSC Partners Seeking a Cure
1:55
Discussion About the PSC Patient Registry at PFDD's Improving Current PSC Treatments Session
PSC Partners Seeking a Cure
Discussion About the PSC Patient Registry at PFDD's Improving Current PSC Treatments Session
5:23
Ricky Safer's Key Takeaways (shortened version) From PSC EL PFDD
PSC Partners Seeking a Cure
Ricky Safer's Key Takeaways (shortened version) From PSC EL PFDD
12:37
Basics of PSC
PSC Partners Seeking a Cure
Basics of PSC
3:05
What is Primary Sclerosing Cholangitis (PSC)?
PSC Partners Seeking a Cure
What is Primary Sclerosing Cholangitis (PSC)?
6:13
Making Our Voices Heard - Externally-Led PFDD for PSC (Full Program)
PSC Partners Seeking a Cure
Making Our Voices Heard - Externally-Led PFDD for PSC (Full Program)
5:57:58